Children are not a burden to escape or endure; they are a blessing that drives us to Christ because we are incapable of parenting well without Him. - Kim Brenneman

Wednesday, October 31, 2012

me- " Joshua, can you get me some water please"

Joshua- "Okay mom"

Joshua goes and gets a cup of water and brings it to me.

Joshua - " Here you go mom, now only a little bit so you don't wet the bed tonight"


Thank you son for making me smile! Hahahaha Oh how i love him.... :)

Friday, October 26, 2012

Because i like qoutes for inspiration...

The reason people find it so hard to be happy is that they always see the past better than it was, the present worse than it is, and the future less resolved than it will be – Marcel Pagnol.

A journey of a thousand miles begins with a single step – Lao Tzu.

Too many people spend money they haven’t earned, to buy things they don’t want, to impress people they don’t like – Will Rogers.

Uncertainty is the only certainty there is, and knowing how to live with insecurity is the only security – John Allen Paulos.

When one door closes, another opens; but we often look so long and so regretfully upon the closed door that we do not see the one which has opened for us – Alexander Graham Bell

Advice is what we ask for when we already know the answer but wish we didn't."

Thursday, October 25, 2012

Because i struggle....

I am a pleaser. I want to make everybody happy and I tend to over commit myself. No wait, i do over commit myself and take to much on. It's like i'm still trying to live like life is normal. Because i should be able to do more because i don't work, Can't i help everyone?
About 5 years ago i attended a bible study at our old church and the one thing that resonated from the older women was that they wish they would have been there for their families more... they were stay at home moms, but they were making meals for everyone else, and helping everyone else when it was their family they should have focused on. There is this mindset in the christian community that if you are a stay at home mom you have so much free time and ability to do things for others. Set aside the fact that you have your own family, go make this meal for a new mom.Those things are all well and good, but if you are making a 5 course roast dinner for a family who just had a baby, but you are feeding your family mac and cheese because you spent all your energy on the other families meal.. there is something wrong there. I see it so much, woman putting all this energy into loving others and giving their crappy seconds to their own family. I don't want to be that woman. I don't want to give love and energy to others when i can't give it to my husband and the ones that i brought into this world! I hit a hard learning curve this past year. I devoted time and energy into basically what feels like a black hole. There is so much to the story, but at the end of the day what i was seeing was a VERY stressed out and cranky me, and a very hurt family who wasn't getting my best. I was letting my family struggle for something that i thought that i could handle. I gained 20 pounds, stressed myself out to the point of developing migraines and lack of sleep. I tried doing it all and i failed and didn't give anybody my best. And so i'm slowly learning to simplify, reevaluate what's best for me, for my family. Because if i'm running myself into the ground trying to care to much or try to hard for something that i shouldn't, then i am doing no good. You know what.... even though i have seen my fault in the area of depriving my family in my quest to make everyone happy... I STILL STRUGGLE. Seriously struggle. And second guess myself. And i pull back and start feeling better and start thinking that i can handle more... and then the cycle begins again.. take on more = take on more stress = get cranky with the ones i love. BAD COMBO.
Sigh.. i ordered a book... because that's what i do when i try to figure out how to balance or work with a certain issue. This book is called "Overwhelmed no more; The complete system for balanced living for parents with special needs children" hmmmmm i have flipped through it and it looks good.

I always get comments that I have my hands full, or that things are really busy and i have a lot going on. And i use to say " well it's not that much, and we're good". Today a specialist called me up because someone we know gave her our number. I get a lot of people recommending what to do with my kiddos and what to listen to or watch or what product to give them. And it's nice but sometimes super annoying. Anyway rabbit trail. So the Lady asked me about my kids and i told her about the autism and the apraxia and the sensory issues... she said that was a lot, and for the first time i said  "YES IT IS!" Because it is... it is A LOT. And by golly I AM BUSY!!!!!! And it felt great to be honest. MY LIFE IS A LOT. And some days I wake up and just pray to God that he can keep me on my feet for that day. Some days i feel wonderful and great and think things are so easy and i totally got this. And i just need to get over the stupidity of taking on more then i can handle... and the thought that i am letting people down. You know what... I NEED TO BE OKAY WITH DISAPPOINTING PEOPLE. Because at the end of the day those that i need to love on are within a 50 foot radius of me most of the time. All others outside that radius should be the ones getting my seconds, not my first. Though i love friends and other family members dearly, my core needs to be taken care of. ESPECIALLY in this tender season. So much growth, so much development is required in my little ones minds.. this is prime time and i can't waste it feeling like i haven't been good enough for everyone else. But i still struggle, and i think with my personality i will always struggle with not taking on more then i handle...

Sunday, October 14, 2012

Qoutes that i wanted to put on the last post, but good enough for thier own!

"I know God will not give me anything I can't handle. I just wish He didn't trust me so much." (Mother Teresa)

"There are two ways of meeting difficulties: you alter the difficulties or you alter the way you meet them." (Phyllis Bottome)

"What lies behind us & what lies before us are tiny matters compared to what lies within us." -Ralph Waldo Emerson

"The central struggle of parenthood is to let our hopes for our children outweigh our fears." (Ellen Goodman)


"Enjoy the little things, for one day you may look back and realize they were the big things." -- Robert Brault


"You've developed the strength of a draft horse while holding onto the delicacy of a daffodil ... you are the mother, advocate and protector of a child with a disability." -Lori Borgman

Sometimes...

Sometimes i just want to stay home....
Sometimes i just don't want to explain why he is not talking...

You see what is frustrating is that we do not have a normal situation. Not only one kid has special needs, but two of my kids have special needs.
Sometimes I forget how things are. Sometimes i forget what normal life is. I mean life is normal for us... but i forget what "normal" kids are like. Usually when we spend a lot of time at home I tend to forget that our life isn't normal. So when we have friends over with "normal" kids, or when we go to places with "normal" kids... we see again how hard things are, and it honestly depresses us..
So I'm just having one of those depressed days. Yep.. I'm feeling sorry for myself that my life is different. I'm feeling sorry for myself that my kids are different. I'm feeling sorry for my kids that they will someday realize this... that they are different.. that they will see that. And it makes me not want to leave my house. It makes me want to stay home and protect my children from the world that i have to deal with for them. They may not have realized it yet, but life will not always be loving and friendly to them. And i know it's my job to do my best to teach them and LOVE them the way they are and teach them how to use their gifts... but sometimes i just want to stay home... i just want to protect them a little longer...

Friday, October 12, 2012

I never wanted to be cinderella...

 
 
When i was a little girl i didn't like Cinderella, snow white, or sleeping beauty. It seemed to me they were just pretty faces that were just dreaming about the man they would marry. That's it... nothing else. No ambition in life but to find their prince charming. Oh Disney...
I had my first movie theater experience when i was 7 years old. My mom brought me and a friend to see Beauty and the Beast. To this day it is hands down my favorite movie. I loved how the main character wanted "adventure in the great wide somewhere". She was Intelligent, strong-willed, outspoken and brave, everything i thought a woman should be. Not like the stupid air headed princess types of before. I loved how belle lost herself in books and dreamed of far off places. I also loved how she went in search of her father when he went missing and when she found him locked up, she sacrificed herself. TRUE BEAUTY.
 
 
 
 
 
When I was a freshman in high school the movie Mulan came out. Mulan plays a close second to Belle in my opinion. She refuses to be labeled and she wants to do something great... was the something great, find a price charming? NOPE. it was to take her fathers place in a fierce war and to defend her families honor and her country. TRUE BEAUTY.
 
 
 
 
In the process of these girls/women finding themselves there happened to be a man, and the man fell in love with her not because of her beauty, not because of her fabulous singing voice or the way that she danced. NO.. they fell in love because of the strength, courage and character that the woman possessed.
 
Maybe that's why i never liked or wanted to be Cinderella or any of those other frilly princesses. Because even from a young age i could see that i had worth, that i had courage, determination and i wanted to make a difference.
 
My mom never expected me to be the adventurous type that would go to college far away from where i grew up, marry a man and intend on living overseas. We did not move overseas, but i do live half a country away from my family. It's funny.. she thought i would be the one who would stay home and be a momma's girl forever. Nope.. this girl had a dream in her heart and a longing to see the world. Adventure, excitement, things I've never seen or experienced before. Of course i am cautious and do these things within reason. :) My mom things driving to Seattle to visit a friend and then driving back in the middle of the night is adventurous ( Seattle is about 2 hours from where we live). I just consider that a nice break! HA
 
I always thought i would teach my daughters not to be the Cinderella type. Well turns out we didn't end up with daughters so now i have a new task. Teach my sons how to find and love a woman NOT like Cinderella... more like belle or mulan. A woman with strong conviction, a woman with adventure in her heart and a dream.Not just a pretty face.
 
What do you think about the disney princesses? Do you feel like they have done an injustice to reality?
 

Tuesday, October 9, 2012

Pumpkin Picking time

Every year we head to Portland's famous, Sauvie Island to go on a hay ride and pick our own pumpkins (as well as indulge in their fabulous produce). Here are some pictures from this year.
 
 
This is a REAL LIFE family picture... :)
 
 
 
 

 
Daniel loves the hayride!
 

This one will do mom!
 
 

We went with some friends.. so here is the gang of kids!
 
 

 
:)

Sunday, October 7, 2012

my life as a song...

If i could squish a bunch of songs together right now to make a life song.. the lyrics to that song would go something like this...

I know what makes me comfortable
I know what makes me tick
And when I need to get my way I know how to pour it on thick
Cream and sugar in my coffee
Right away when I awake
I face the day and pray to God I won't make the same mistakes
Oh the rest is out of my hands

I will learn to let go what I cannot change
I will learn to forgive what I cannot change
I will learn to love what I cannot change
But I will change, I will change
Whatever I, whenever I can






My heart is breaking for my sister and the con that she call "love"
When I look into my nephew's eyes...
Man, you wouldn't believe the most amazing things that can come from...
Some terrible lies...






All this pain
I wonder if I’ll ever find my way
I wonder if my life could really change at all
All this earth
Could all that is lost ever be found
Could a garden come up from this ground at all

You make beautiful things
You make beautiful things out of the dust
You make beautiful things
You make beautiful things out of us

All around
Hope is springing up from this old ground
Out of chaos life is being found in You







When she was just a girl
She expected the world
But it flew away from her reach
So she ran away in her sleep
Dreamed of para- para- paradise
Para- para- paradise
Para- para- paradise
Every time she closed her eyes






Home, Let me come Home
Home is Whenever I'm with you
Home, yes I am Home
Home is wherever I'm with you
Moats and boats and Waterfalls, Alleyways and payphone calls
I been everywhere with you (that's true)

Laugh until we think we'll die, barefoot on a summer night
never could be sweeter than with you

And in the streets you run afree,
Like it's only you and me,
Geeze, you're something to see.






Don't you worry there my honey
We might not have any money
But we've got our love to pay the bills

Maybe I think you're cute and funny
Maybe I wanna do want bunnies do with you if you know what I mean

Oh lets get rich and buy our parents homes in the south of France
Lets get rich and give everybody nice sweaters and teach them how to dance
Lets get rich and build a house on a mountain making everybody look like ants
From way up there, you and I, you and I
 
 
 
 
 
 
 
 
Did you know that you could be wrong
And swear you’re right
Some people been known to do it
All their lives
Now I’m right here, and I’m right now
And I’m hoping, knowing somehow
That my shadow days are over
My shadow days are over now
 
 
 
 

 
I see Your face in every sunrise
The colors of the morning are inside Your eyes
The world awakens in the light of the day
I look up to the sky and say
You're beautiful

I see Your power in the moonlit night
Where planets are in motion and galaxies are bright
We are amazed in the light of the stars
It's all proclaiming who You are
You're beautiful

I see You there hanging on a tree
You bled and then you died and then you rose again for me
Now You are sitting on Your heavenly throne
Soon we will be coming home
You're beautiful

When we arrive at eternity's shore
Where death is just a memory and tears are no more
We'll enter in as the wedding bells ring
Your bride will come together and we'll sing
You're beautiful

I see Your face, I see Your face
I see Your face, You're beautiful
You're beautiful
You're beautiful


I made my mistakes
I seen my heart cave in
I got my scars
I been to hell and back again

Born for the blue skies
We’ll survive the rain
Born for the sunrise
We’ll survive the pain

We’re singing…
Hey, you can’t count us out
We’ve been running up against the crowd
Yeah, we are the dark horses
We’re singing…
Wait! It’s not over now
We’ve been down but we’ve never been out
Yeah, we are the dark horses

We found the way out
The city takes everything it can
But outside the crowds
I can feel my lungs again

Born for the blue skies
We’ll survive the rain
Born for the sunrise
We’ll survive the pain





I can't believe what she said
I can't believe what he did
Oh, don't they know it's wrong, yeah?
Don't they know it's wrong, yeah?
Maybe there's something I missed
But how could they treat me like this?
It's wearing out my heart
The way they disregard

This is love, this is hate...
We all have a choice to make

Oh, Father won't You forgive them?
They don't know what they've been doin' (oh no)
Oh, Father, give me grace to forgive them
'Cause I feel like the one losin'

Well it's only the dead that can live
But still I wrestle with this
To lose the pain that's mine
Seventy times seven times
'Cause Lord it doesn't feel right
For me to turn a blind eye
Though I guess it's not that much
When I think of what You've done.

This is love, this is hate...
We've got a choice to make

Oh, Father won't You forgive them?
They don't know what they've been doin' (oh no)
Oh, Father, give me grace to forgive them
'Cause I feel like the one losin'

Oh, no!

Why do we think that hate's gonna change their heart?
We're up in arms over wars that don't need to be fought
But pride won't let us lay our weapons on the ground
We build our bridges up but just to burn them down
We think pain is owed apologies and then it'll stop
But truth be told it doesn't matter if they're sorry or not
Freedom comes when we surrender to the sound
Of mercy and Your grace, Father, send Your angels down

*leanne rimes- What i cannot change, * Fun -Some nights, *Gungor- beautiful things, * coldplay- paradise, *Edward Sharpe,  Home *Ingrid Michelson- You and I, *John Mayer- Shadow Days, *Phil Wickham, You're Beautiful, *switchfoot- dark horses, *Losing, tenth avenue north

Thursday, October 4, 2012

Ben

If you are interested in following Ben's story you can keep up to date yourself here...

http://www.caringbridge.org/visit/benjaminisaac

You will have to put in your e-mail address and make a password so you can access the page. Jana is very good about updating how Ben is doing and how things are going and they have many pictures posted. They will be making a map for Ben and pinpointing all of the people around the world that are praying for him and thinking of him. They would love some encouragement or a quick note if you have time!

Thank you friends!

Tuesday, October 2, 2012

another update

Here is the latest from Ben's mom...
Our brave boy Benjamin's glucose is high and he has a post-op fever. Please pray for wisdom for the nurses and doctors as they get this under control.
Ben is having some pain now and is becoming more restless....please pray.

Update on Ben

Surgery is complete ...Dr. Nathaniel explained that the mass was the size of a football.!!!!!!!!!! 3 lbs. !!!!!!!!!!! All out and lost a kidney. Benjamin is stable with a tube in his nose. He is resting now and his family is able to visit him and decorate his hospital room.
Thank you friends for caring enough for a fmaily that i care for to say at least a quick prayer... a quick sharing of the burden, a quick tear shed and thanking God that tonight it's not your child.

Breaking hearts and prayers needed

When i was in high school i babysat for a wonderful family. They were the very picture of parenthood and marriage i knew i wanted in my life when i someday had my own family. I just found out last night that their precious baby... their only son, who is 5 years old, was diagnosed with kidney cancer. He will be undergoing surgery today to get one of his kidney's removed and a internal line put in for chemotherapy. If you would please keep this precious little boy and his family in your prayers!
Benjamin is his name, and his mom (jana) and dad (dave) have 3 other daughters as well.



Thank you friends!