I'm not going to miss this. I'm not going to miss the screaming, i am not going to miss the extreme freaking out over little things. I am not going to miss the persistence on trying to get something so simple, like drinking out of a cup, to be accomplished. I'm not going to miss the feeling like i am going to go crazy. I am not going to miss stepping outside the house and having my son screaming because he doesn't want to go outside but he doesn't like to be more than 20 feet away from me. I'm not going to miss telling him for the 100th time that week that i am not going anywhere and i will just be in the yard and he has the choice to be inside or outside, but he doesn't need to make everybody miserable in the process because of the screaming. I'm not going to miss screaming.. PERIOD. You see... when one has a child who is non-verbal and has HIGH sensory issues .. one hears A LOT of screaming... A LOT of freaking out. I can't tell you how many times a day i say " stay calm, get self control, relax, breath, try again". Some days are wonderful and fabulous and i have the patience of a saint and unending love to give and the squeals and screams do not phase me. Other days i feel like if i hear just one more scream.. even a happy one.. i will need to be committed to a mental institution.
*edit... i had some rant about how having a special needs kid is so much harder then a nuerotypical child and how parents who do not have special needs kids have no idea how hard having a special needs kid is.. but i think i may be offensive , i'm feeling fiesty.. so i took it down. :)
One thing with having a special needs child is that the little things, and the little accomplishments mean so much more... but the lows are oh so low. And the weariness is so... weary. And the heartaches just ache. And you wonder more, and worry more, and think maybe this would be better, or that would be better. You cry out to God and ask "WHY ME?" and people say " Because God knew you could handle it.." THANKS... SO i guess that makes me a flipping amazing parent and you a crappy one who can only handle a "normal" child. HA! You know i really don't say that... but sometimes I think it.
I thank God that my youngest son does not have issues... without him our home would be depressing. Honestly. It sounds terrible, but there is the truth.
Oh i wouldn't give my children away... would i change them? Well that's a hard question. I have grown SO MUCH from having to deal with special needs and having to view the world differently for them. I think they have a lot to teach and give to the world...But yes, i would give them better gifts with communication and more tolerance to the world around them that seems to set them off. I would trade the screaming.. yep... i would trade it any day... and i would NOT miss it.
As i type this Daniel is happy screaming... and i love him... but my ears hurt from the pitch. It's so high... And every time he screams like that i really hope that he does not do it when he is a teenager. And i REALLY hope he can learn to self calm himself when he gets bigger.. because i can't imagine a 150 pound kid freaking out running around in circles and screaming because something isn't perfectly the way he wants it. Each year he calms more, but he does have a long way to go. sigh.
This isn't a pity post. It's just an honest, this is how i feel and this is my life, post. Because ...honestly... I'm not going to miss this...